Just today, a young spoonie friend — who has recently, sadly, received several serious diagnosis she is having to adjust to suddenly — made a post on Instagram, saying that three different doctors had all told her something to the effect that she could still have a “good life” or a “decent life” with her sicknesses — and she was understandably very upset.
As we all were when we were early in our disease processes, she was adamant that she would NOT be living a sick life but rather would fight through this and would have a “normal” life. As…
It’s not surprising, as my next big project is my death book, that I am one acquainted with the night — and thus spend more time thinking on these things than your average bear. This is particularly true now that I have promised myself to have this book ready to go by the end of the year, even with school starting back. (I’m going to be standing on my head — but I think I can, I think I can. . .)
Still, apart from that even, life has been just rough in its reminders of how frail we really…
Though I understand its point, I haven’t been able to warm to the idea of Disability Pride Month. The wording is just too . . . awkward. . . for me. I am, however, all aboard for Disability Awareness.
And, goodness knows, there is much to consider.
I was just sharing with my bestie a Facebook memory from our trip to Montreal two years ago, when we tried to visit St. Joseph’s Oratory, the Church of Healing — and couldn’t get up to it, because I was totally confined to my smartchair at that time and it was inaccessible to…
He’s Still Writing A Beautiful Story.
(I wrote this for my writer’s conference — but wanted to share it for disability awareness month here as well. My story has changed with my illness — but God has been so good.)
Through many dangers, toils and snares,
I have already come;
’Tis grace hath brought me safe thus far,
And grace will lead me home. — Amazing Grace, John Newton.
Over the years, since the beginning of my journey with autoimmune disease and chronic illness, there have been times when I thought it would absolutely break me. Honestly, there have been…
My heart is so heavy with the news about Ravi Zacharias that has just rocked the Christian community — and it has honestly triggered me in a very visceral way.
If you aren’t familiar with Ravi — or, if you’ve only read this story in the newspaper — it isn’t really fair to describe him as only an evangelist or some kind of traveling minister. Prior to his death, he was a Christian apologist that was respected as one of the greatest of the modern era.
(This is the point where I almost posted a clip of his work as…
I turned 42 two weeks ago and I’ve seen many life changes over the past eight or so years related to escalating autoimmune disease.
What started with a diagnosis of celiac disease — that caused a GI bleed and profound anemia — quickly also brought rheumatoid arthritis.
The RA was brutal — and it was not manageable with long-term steroid therapy.
The daily prednisone — in addition to major weight gain, ridiculous bruising, and thinning skin — caused stress fractures in every metatarsal in my feet. Literally.
Eventually, one of those fractures would lead to Complex Regional Pain Syndrome, also…
Coming Back Alive
Therefore prophesy and say to them: ‘This is what the Sovereign Lord says: My people, I am going to open your graves and bring you up from them; I will bring you back to the land of Israel. Then you, my people, will know that I am the Lord, when I open your graves and bring you up from them. I will put my Spirit in you and you will live, and I will settle you in your own land. Then you will know that I the Lord have spoken, and I have done it, declares the…
It has been a WEEK and I think we can all agree that our great hopes that 2020 would leave so that the next year would be more peaceful may have been unfounded.
On Wednesday, my daughter and I were running a few errands — which is rare in and of itself with COVID — when I got a Breaking News notification on my phone that armed Trump supporters were forcing their way into the Capitol as the Senate was attempting to certify Election results.
It honestly took my brain a minute to process what I was reading.
Christmas cards did not go out in a timely manner this year.
In fact, owing to a medical crisis involving my dominant hand — AFTER I thought I was in the clear — I have a small stack that needed recipe cards included I had been unable to write until now that won’t be going out until tomorrow, the day AFTER Christmas.
(But, you know, for what it’s worth, when those late cards DO arrive, the recipients can know that they have been thought of often and prayed over and that those cards really are a gift of love even…